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Feature
Article |
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The Roller Coaster of Caregiving |
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By Jane
Cassily Knapp, RN, LCSWC |
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The decisions to become a caregiver are usually made in
crisis situations. We rarely have time to consider the
ramifications of these decisions nor do we really fully
understand that there are any ramifications. ...Continued
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Additional
Article: |
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The Reluctant Caregiver |
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By
Kate Murphy, R.N.
It was easy for me the first time around as
a caregiver. Twenty years ago I was much younger and emotionally
stronger to carry out the role.
....Continued
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Caregiver Story |
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A Caregiver’s Memories: How to Deal with Moving On
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By: Patricia St.Clair |
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It was during that period of time after the hungry
feasters snaked through the line of platters, bowls and
trays of assorted delights, but prior to the point when
the reality of the quantity eaten exceeds the norm.
...Continued
(Do you have a story?
Tell us.)
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Caretips |
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Give Yourself a Break, Right Now |
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Doctor appointments that must be scheduled; the constant care and
attention your loved one needs, both physically and emotionally;...Continued
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Carenotes |
My mother has a rare type of Alzheimer's (can't remember the
name) that starts in the back of the brain first; effecting the
senses rather than memory. Her condition is pretty severe with
it now effecting her memory and her ability to get words out.
She's nearly blind and can hardly feed herself. I give her
showers, dress her, make her food, help her to the bathroom etc.
etc. She has mild seizures daily (with them happening most often
out in public for some reason) which she takes medicine for, she
also has a thyroid problem which means a lot of things but
mainly her appetite is nearly non-existent and she is always
cold. (which she also takes medicine for)
Anyways, she has very little income which she gets from my
father's retirement plan ($140 monthly) and he passed away
nearly 10 years ago. Right now I am living with her and my two
brothers. I have a that usually brings in anywhere from
$800-$1200 monthly. My other makes barely enough to pay his car
payment. My bigger brother is a drunk. He's been drinking for 10
years and has massive seizures if he doesn't get enough alcohol.
He has no job and can't hold one either.
I am selling my current house and my mother and I are moving
into a smaller one which we are renting. My brothers are not
moving with us for a few reasons. 1) They hardly help my
mom now. They DO help, just not anything I
couldn't do by myself if I didn't work. 2) They can hardly carry their
own weight let alone my mom's financially speaking. 3) Not
enough space in the new house. 4) They don't clean up after
themselves and I'm sick of being house maid.
Rent will be $1095 monthly. She will be paying for
rent (which is coming from investments she had piled up,) and I will hopefully be
paying for all other bills. She is at a point where she needs someone there
whenever she is awake. Hospice care can be expensive. (and I
will NEVER put her in a care home EVER) Now I've been thinking
lately...
My question is, how much would
hospice care cost me when I work 25 hour weeks?
I live in Las Vegas Nevada and I am 19, if there is any programs
you can recommend please tell me! Any advice or anything you can
do to help me figure this out will be greatly appreciated.
(This carenote was taken from our
discussion forum and has been scaled down for this newsletter.
To read the entire post, go to our forum at
http://forum.caregiver.com.
Select the category "The Need to Share" and the post is "Need
Some Serious Advice".)
Answer This Week's CareNote:
carenotes/2008/index.htm
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