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Early detection of Mild
Cognitive Impairment is essential for both loved one and caregiver. A
treatment program for any given condition or disease involves two
potential avenues of approach: prevention of the disease and/or
treatment of the disease. Obviously, prevention is the ideal since it
eliminates the disease. Polio and smallpox vaccines are examples of
this approach.
Unfortunately, no one
has found a way to prevent the occurrence of MCI, which is believed to
be a precursor to Alzheimer’s disease (AD). Any treatment to date only
slows down the disease’s progression. Researchers believe that the
beginning of the disease is the result of “dents and bruises” that cells
experience in a lifetime. This sets off a waterfall of neurohormonal
and neurophysiological processes that affect the complex architecture of
the brain, eventually resulting in AD.
Your loved one’s doctor
will do as much as he can for your loved one, but what can you, as a
caregiver, do?
here are several
advantages for a caregiver in the early diagnosis of MCI in a loved
one. Most importantly, you and your loved one can actively plan their
future whether it is financial, long-term care or end-of-life planning.
You can improve your understanding of the changes that are—and will—take
place in your loved one, and educate your family and friends. You can
seek out community resources. You can improve your knowledge on safety
issues and on preventative health. You can stay up-to-date on progress
being made with possible treatment options. And you can increase your
awareness of MCI in general, and of local and national research
projects, including clinical trials.
Until a cure is found,
planning ahead is essential. The first thing to do is gather important
papers together, organize them, and put them in a safe place. Some of
the papers that should be included are:
-
Bank
accounts/safety deposit boxes (and account numbers)
-
Insurance
information (health, long-term care, and life—and policy numbers)
-
Deeds and titles
-
Birth certificates
-
Social Security
and Medicare numbers
-
An up-to-date will
-
Family attorney’s
name and number
-
Military
affiliations (including discharge papers)
At this early stage,
your loved one can help plan for their long-term care also. Will they
prefer an assisted living facility or a nursing home, for example.
Legal issues should be discussed at this point as well. These usually
take the form of advanced directives. The term, advanced directives is
used to encompass all options that make your loved one’s wishes known.
Telling a caregiver now gives them a voice in decisions that will affect
both of you. Some of these include:
Although it is a
difficult subject to talk about, your loved one’s end-of-life wishes
should be discussed now. So many families never touch on this subject,
and, then at the time of death, quick decisions must be made quickly
through a veil of grief. Honor your loved one’s memory by finding out
now what they want.
Learning more about
your loved one’s condition is easier than ever thanks to a little
invention called the Internet. Although it may be difficult to find
many web sites on the specific condition MCI, there are numerous web
sites on Alzheimer’s disease and all of its stages. When you learn
about your loved one’s condition and then pass on that information to
your family and friends you become an advocate for your loved one and
his or her condition. Advocates can affect changes in the quality of
care and even legislature, and it is one of the most important things
you can do for both of you. Somewhere along the path of your education,
you will find out all you can about the treatments presently used for
your loved one’s condition. Because MCI is a relatively new concept,
doctors use the medications and treatments that have been designated for
AD. There is no cure yet, but the medications used now can slow the
progression for up to almost two years. This can keep your loved one at
home for longer and give you more quality time together.
AD, of which MCI is a
part, is one of the most researched diseases in the world. There are
numerous local and national research projects in progress, and most of
these include clinical trials. You might consider a clinical trial for
your loved one for several reasons:
-
Active
participation in your loved one’s health care
-
Getting your loved
one the finest medical care at leading facilities
-
Your loved one
being the first to benefit from treatments not yet available to the
public
-
Helping others
Of course you and your
loved one must give informed consent. But think of all the good you
could do—not only for yourselves, but for future generations. Once
again, it’s about taking charge and advocating for your loved one’s
care.
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