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Huntington's Disease: Tips for Coping
By Heather Pratt
Some of the suggestions I have for
living with HD are:
-
Keep life simple - Rest, Exercise, Nutrition, A daily
laugh Carry earplugs with you when you are out (Some
people with HD are sensitive to noise)
-
Carry calendars with you to write down everything you
must do for the day and any information you get from
other people
-
Develop a message centre in your home, so other family
members have an idea where to look for stuff
-
Use an answering machine so you can rewind the tape and
recheck those messages (One of the symptoms of HD is
transposing numbers)
-
Use sticky 3M note pads to keep your place in cookbooks
- also works in crochet or knitting patterns
-
Use one color of paper for phone messages Have a
check-list on the front door so you can make sure you
have keys, etc.
-
Rewrite recipes so they have a numbering system (1. Cut
vegetables, 2. Spray pan, etc.)
-
Try to do the same task on the same day of each week
(Wash on Tuesday, etc.)
-
Get a watch with an alarm clock and set the alarm to
remind you to catch bus, leave for doctor's appointment,
etc.
-
Listen to relaxing music
Reprinted by permission of Heather Pratt who has
Huntington's Disease.
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