April 17, 2002 - Sharing Wisdom conference is
now five years old and a great time for all in attendance, our first
Robert M. Barg Memorial award winner, Mr. Sy Sperling makes a memorable
and moving speech as does our keynote speaker, CBS’s Dr. Sean Kenniff.
Sad note: The keynote speaker of our first Sharing Wisdom conference
(1998), Mr. Robert Urich, passed away the day before the conference.
October 5, 2002 - With the Ohio hospice and
Palliative care organization, we host a tremendously successful Fearless
Caregiver Forum. Since the middle of august, I’ve been on the road every
week, giving speeches at caregiver events. (My favorite part of what I
do).
November 1, 2002 - Saw great issue of Real
Simple magazine on newsstand in airport. Bought every copy. (Doesn’t
hurt that we were interviewed)
editorials/real_simple.htm
November 15, 2002 - Interesting two days. On
the phone interviewing, Rob Lowe and Delta Burke – Gerald McReiney. All
great folks and great caregivers. We have conducted over 35 celebrity
caregiver interviews since the launch of Today’s Caregiver
magazine.
editorials/the_care_team.htm
December 5 2002 - On to Kentucky for a
Louisville area Fearless Caregiver Forum.
editorials/snowbound_rebound.htm
January 6, 2003 - Met with Leeza Gibbons Memory Disorder Foundation
Executive Staff. We are going to hear incredible things from this
organization. Leeza agrees to be Keynote Speaker for Sharing Wisdom
conference (April 25)
February 1,2003 - Like so many national tragedies, the loss of the
space shuttle Columbia plays out across the television sets in the lobby
of the hotel where we hold the first annual National Adult Day Services
Association (NADSA) conference. As a board member I am proud of the
staff’s efforts in creating a terrific first year event.
editorials/caregivers_all.htm
February 9, 2003 - Our office is the scene of
the judging for the first annual Caregiver Friendly awards. If only the
judges knew what the place looked like the hour before they arrived! As
I gave the instructions to the judges, I was (nearly) speechless looking
across those assembled here on this sunny Sunday morning. Social worker,
Eldercare Attorney, National Non-profit organization leader, case
manager, insurance and marketing experts, Homecare organization
president, physician and nationally renowned health media expert. How
are we going to top this next year? We were impressed with the care and
consideration they each gave to every entry.
editorials/notes_from_the_road.htm
February 10, 2003 - Onto Tampa. I am due on Fox
TV show “Your Turn With Kathy Fountain”. Learned a good lesson. I
usually arrive for any event the day before, but this is only across the
state and a ½ hour flight. Right? Wrong. A rare fog blankets western
Florida and all Tampa flights are grounded. We get to Tampa one half
hour before airtime. On the show were a caregiver who personifies
“Fearless Caregiving” and a lawyer for a gentleman who killed his mother
who was living with Alzheimer’s. The phones were jammed and we took
calls nearly the whole show.
editorials/mike_and_mindy.htm
February 11, 2003 - I can stop holding my
breath. Our first Tampa area Fearless Caregiver Forum is packed and a
rollicking day. I think if we didn’t have to break for lunch we would
still be fielding questions during the panel. Which would be all right
with me. Steven and I get funny stares from the folks at the
Florida State Fair. Could be that we are the only ones in the entire
fairgrounds in suits. Went to visit our Friend Cynthia and her
HealthExpo staff.
February 13, 2003 - Onto Savannah. And the Coastal Georgia Area
Agency on Aging’s first annual conference, “From the Heart”. Yes, that
is me doing the wheelies in the electric wheelchair on display. Hey,
they left the keys in it, what’s a guy to do. These folks pulled off a
truly terrific event and I’m proud to be there as the first keynote
speaker. Besides, Savannah sure was pretty and this time I got there the
night before.
February 19, 2003 - Tammy told me true. I spent a spellbound hour
with Ms. Debbie Reynolds (for a future magazine cover interview). Here
is a caregiver’s caregiver. She not only cared for her own parents and
relatives, but a few years ago adopted a senior friend in need and
became her caregiver.
February 21, 2003 - A tragedy in the Today’s Caregiver Family.
Throughout the past two months, my friend and our managing editor, Nancy
Schonwalter has been taking nearly weekly trips to New Jersey to spend
time with her dad, Lee, who was battling stomach cancer. At 8:30 this
morning, Lee lost the battle. You would have to know Lee to understand
how he waged the war in his own inimitable way. At eighty years of age,
you could have sworn he was sixty-two, at most. I truly feel that I am a
better person for having known him all these years, and that when times
are tough, I am able to summon the willpower, humor and spirit that
personified the man.
editorials/the_whole_world_smiles.htm
March 13-16, 2003
-
The best way I can think of to spend my birthday (15
th) is
talking to family and professional caregivers which I do this year
during two sessions of the outstanding American Society on Aging
conference held in Chicago. Terrific audience(s). I truly believe that
they will bring back home with them the concepts of becoming a Fearless
Caregiver to share with their clients and friends. Also, a lot of
fun to be in Chicago during Saint Patty’s day. Say no more! The first
annual Today’s Caregiver Magazine Caregiver Friendly awards winners are
announced.
caregiverfriendly/2003/index.htm<
March 28-29, 2003 - I was honored to be the keynote
speaker for the fifth annual Agribility conference in Sioux City South
Dakota. I have been a fan of the Agribility project for many
years. Since 1991, Agribility has been helping people with
disabilities farm safely, efficiently, and profitably
I must admit that South Dakota in March is, well COLD. But the
reception I received couldn’t be warmer. I was very impressed by
the interaction between those living in cities, on farms and on
reservations and how much they learned from one another about caring for
their loved ones during those two days.
editorials/a_bonus_epiphany.htm
April 25, 2003
-
We are excited that Keynote Speaker for the Fort Lauderdale Sharing
Wisdom caregiver’s conference is Ms. Leeza Gibbons. Leeza is announcing
the launch of her new foundation to support caregivers of those living
with memory disorders. Leeza and her foundation staff are
wonderful to work with. I am glad that Kimberly Clark is a sponsor
of the event, since there wasn’t a dry eye in the house once Leeza and
her dad finished speaking.
editorials/a_truly_fine_day.htm
June 2003 - Is a road trip month, onto Muncie,
Toledo and Washington, D.C. for Keynote speeches. Two at aging
conferences and one at the SMA (Spinal Muscular Atrophy)
conference. SMA is a disease which affects the voluntary muscles for
activities such as crawling, walking, head and neck control and
swallowing in infants and children. It was truly heart wrenching to see
how severely some of the kids are affected by the disease but heart
warming to see how each member of every family that I met at the
conference had a role to play in the care of their loved one. I
was astounded at how well some of the youngest siblings of those with
SMA were taking on their caregiving roles. One teenager was able to
unload (from the family van) take apart and reassemble his younger
brothers array of mobility equipment in lightning speed. All the while,
shepherding his siblings to the front desk without losing a beat.
The third anniversary of Gramps passing.
July 4, 2003 - Our Ninth anniversary.
So, that’s where all the grey hairs came from. Hard to imagine
that it was so many years ago that rain soaked day when the first issue
of Today’s Caregiver Magazine rolled off the press. Consistently
over one million plus hits on caregiver.com and the newly upgraded
discussion list is working well, we are getting a regular group of
caring caregivers who are helping to support the new members to the
list. We are gearing up for our two August events with Ms. Debbie
Reynolds. The second edition of The Fearless Caregiver Book is released
in paperback. July also saw me back in D.C., this time as a guest
of one of my radio idols, Ms. Diane Rehm. Along with me on the
program was someone who really exemplifies living as a fearless
caregiver, Ms. Irene Jackson-Brown.
editorials/speaking_with_angel.htm
August 5, 2003 - We are joined in
Cleveland by Ms. Debbie Reynolds and over 340 caregiving Ohioans for the
Cleveland Fearless Caregiver Conference. The Toledo Area
Agency on Agency loaded a bus with 50 caregivers for the three hour trip
to Cleveland. Debbie was (what else) terrific and I was impressed
that the attendees related to her as another caregiver with a story to
share. No questions about Liz or Eddie or even being Tammy, rather
the questions were all of a personal nature asking how she deals with
her stress and depression as a family caregiver which she answered as
well as any social worker or therapist could.
August 10, 2003 - Thanks to USA Today for
including us in a great article on senior drivers. This is a topic
which regularly comes up during our conferences and the potential
answers are as varied as the families in which these driving battles are
regularly played out.
editorials/and_leave_the_driving.htm
August 28, 2003 - We are once again
with Debbie in Phoenix, Arizona for a Sharing Wisdom conference and over
400 of our closest Phoenician friends. We were able to present a
Care heroes award to a recipient who could not attend the Fort
Lauderdale event, Ms. Bonnie Danowski.
editorials/cleveland_rocks.htm
September 5, 2003 - I’m in Corpus Christi
as the keynote speaker at the Grandparents raising Grandchildren
conference. This is a huge issue of concern to anyone who cares for
caregivers. In so many families these days there is a generation missing
and those seniors who are caring for family members with aging issues
are now finding themselves also squeezing into elementary school
classroom chairs during parent-teacher conferences for their
grandchildren. I was also able to speak on the issue at the Corpus
Christi NBC and CBS affiliates.
editorials/still_strong.htm
September 23, 2003 - Back to South Dakota to
speak at the Area Agency on Aging’s annual caregiving conference. An
extremely lively interaction with family and professional caregivers
held on the state fair grounds. And then onto Kodiak,
Alaska. A beautiful town with a big heart. The conference was held
in a high school auditorium with a stage and sound system which would
rival Broadway. The night before the conference the Russian
symphony played in the auditorium. The caregiver event had an
impressive turn out, with people coming from towns and islands from
miles away. We can all learn from the sense of community that
rural caregivers in Alaska bring to the picture. Can’t wait to be
invited back. Met Governor Hammond, the octogenarian two-time governor
of Alaska, who has more energy than I think I ever will and was battling
for Alaska’s seniors for decades.
October 25, 2003 - Closer to home, one of
the only events I have been able to drive to. It is extraordinary
how the healthcare organizations (for and non profit) have come together
in Melbourne. The event was truly a celebration of the community’s
sense of unity as well as a celebration of its families who care. Things
happen so very fast with this group. Within a week after the event
I introduced them to Leeza’s team and they are about to open the third
Leeza’s Place in the country.
November 13 and 14, 2003 - The shoe is on the other foot week. I am being presented an award
by The Partnership for Aging at their annual conference held in Oklahoma
City. After being on the giving end of awards it’s a funny feeling
to receive one, but I am in good company. Another recipient is
Jack Lalanne who is in better shape today than I have probably ever
been. Got to speak to a group of soggy (awful night)
caregivers in Stillwater the night before, which makes for a great trip
all around. We have partnered with the folks who have made the
internet a political tool from this campaign forward, thanks to their
work with the Howard Dean campaign, Meetup.com. Meetup has asked
us to be their partner in creating an opportunity for caregivers to meet
on a regular basis in small groups around the country. Since the
idea of caregivers getting together is near and dear to our hearts, we
were thrilled to oblige.
December 15, 2003 - An entirely different trip awaits as we
take off for a three week trip to the Philippines. We receive so
much email from caregivers in the country that I jump at a chance to go.
We met with government organizations, caregivers and caregiver trainers
to get a better picture of what is needed in the country. Went to
a rural festival (kind of like a Sadie Hawkins dance) and ate something
which didn’t agree with me to the tune of three days in the hospital.
I must say that I wanted to experience the Philippines healthcare system
– but not this up close and personal. The doctors and staff were
exceptionally caring and competent and a three day trip to the hospital
in the states would have probably been more then the $60 dollar bill I
received for services rendered. One of the most impressive things I saw
was how well the families of the patients are treated. They expect that
family members will stay with loved ones and have beds and food ready
for them. Like McArthur, I can’t wait for an opportunity to
return- to the Philippines, not the hospital.
January 31, 2004
-
In Los Angeles, for our first LA Fearless Caregiver conference. I
am so excited about spreading the word westward. We constantly
hear from the caregivers who attended the conferences over the past
years and I most especially love the stories of when they are able to
apply some things that they learned at the event they attended in heir
daily life as caregiver. The caregivers and healthcare organizations in
LA have been outstanding to work with and I spoke with a group of
dedicated professionals in Carson, California two days ago. The
event is held on probably the coldest day LA has seen in years, but
thankfully one of the clearest. The sky was crystal clear. The
center at UCLA was beautiful and as the Q and A session started to roll
so did the tears. I thank the caregivers who bravely stood to tell
their story and ask questions of the expert panel but am especially
grateful to the many times when the answers they sought came for their
fellow attendees. One special moment occurred when a gentleman
stood and told of his life as a person living with Alzheimers and how he
was caring for his wife living with MS. The 2004 LA Fearless Caregiver
award recipients were so very well-deserved, Theresa Lowe and Dr. Donna
Benton of the Los Angeles Caregiver Resource Center. Leeza shared the
stage with two gentlemen who where caring for their loved ones and of
course more tears flowed (that’s why I now travel with the giant size
Kleenex). We look forward to a return trip to LA.
editorials/up_close_and_personal.htm
February 22, 2004 - Like all good caregiving, what we do around here is a team effort. None
of it is possible “if not for the courage of our fearless crew.”
The only way that Steven and I are able to spend time with caregivers at
the Fearless Caregiver conferences and I am able to speak at other
events is because of our staff, headed by Nancy Schonwalter, the
Managing Editor, but that does not tell the whole story. The joke around
here is that Nancy refuses to learn anything about the phone system
because there needs to be one thing that she cannot be called upon to
explain or fix. I am writing this on Saturday afternoon and Nancy is
also in the office having been here til midnight on deadline. (I think
in the past three months there have been only about two weekends that
have not found her in the office) with Adnan Razak who redesigned the
magazine taking us into the level of the national glamour magazines he
worked on as creative director his years in New York. I always look
forward to going on the road to talk with caregivers and one of the
reasons is that I know that things are so ably attended to back at home
base.
February 25, 2004. Touched by a Roomful of Angels. Our first
Atlanta Fearless Caregiver Conference was this week and I was lucky to
have found myself spending the day with a roomful of angels including
Reverend Della Reese. The morning Q and A session was a fast paced
exciting section of the event, with answers to participant questions
flying across the room. I am thankful to the panel of experts who were
there to help answer these questions but was overwhelmed by the
tremendous answers coming from the caregivers in the audience. That’s
what being a Fearless Caregiver is about. We were all moved by the
lovely lady dressed in all white who brought her daughter to the event ,
(okay, dragged her daughter) because the lady in white knew that she had
significant memory problems and wanted her daughter to be able to get
all the help support and advice she deserved. The ice sculpture supplied
by the hotel was a nice touch, but about an hour after we left, the
sculptor could have scooped the ice off of the streets (two inches of
snow fell that night). Della Reese joined us in the afternoon and was
all that you would imagine her to be; giving, warm and knowledgeable.
She spoke of the wonderful work of Faith in Action and signed
autographed, took pictures and had fun with the attendees until the very
last person left. An Angel indeed.
March 2004 - Steven and I
spent time at the American Society on Aging conference in San Francisco,
where we met up with friends and colleagues from around the world to
discuss the latest advances in supporting seniors and their caregivers.
Hint: there are a lot of fun technologies on the horizon. It is also
always a great time spending a few days with hundreds of our fellow
senior advocates.
editorials/lenoras_mom.htm
April 29 - 30, 2004 - We spent
the day with 540 of our closest friends and neighbors at the eighth
annual caregiver conference we have held in our own back yard of
Southeastern Florida. Leeza Gibbons graced us with her presence once
again and immediately connected with a large roomful of her fellow
caregivers. Not only is it bad enough to have to follow a class act like
Leeza on stage at our own conference, but the very next day, I followed
Leeza and Art Linkletter at the LTCforum in Orlando - I think I am going
to fire my agent. Art was a truly i /mpressive speaker, not only for his
talent and humor (he was really funny), but his big heart. I spoke to
the audience of Long Term Care insurance professionals about how to best
support the people that they most often find themselves sitting across
the kitchen table from, the family caregiver. With the amount of bright
and caring people in the audience, I think any old stereotypes of people
in the insurance industry are certainly dead and buried.
editorials/caregiver_friendly_award_winners.htm
June, 2004 - Okay, you don’t
really have to genuflect, but I must warn you that as of today, I am
certifiable royalty (and have the plaque to prove it)…at least in
Kentucky. I spent a wonderful day with the good folks of the Purchase
Area Agency On Aging at a terrific caregiving conference, complete with
Santa Claus (really). At the end of the event, I was honored to be
presented with a plaque signed by the mayor officially designating me an
official Duke of Paducah. (See, I wasn’t kidding.)
Oh, yeah, one other thing happened
in June, I was honored to be invited to the first annual Celebration of
Caregivers Gala put on by the Rosalynn Carter Institute. It s always a
pleasure to be in the same room as Mrs. Carter, this time accompanied by
President Carter and I am immense fans of Ronda Talley and the staff of
RCI. Oh, yes, it was also fun to spend a little time with one of my
favorite new singers, Mr. Clay Aiken. Talk about wowing an audience. I
interviewed him in his dressing room and found him to be quite
knowledgeable about caregiving for children. He should be, as a recent
graduate of the University of North Carolina at Charlotte School of
Social Work and co-founder of the Bubel-Aiken Foundation (Hey, we all
need something to fall back on.)
editorials/from_paducah_to_aiken.htm
July 2004 – Not a month to
“hang at the beach” - but who cares? I wouldn’t want to spend it any
other way. We hosted our first annual Philadelphia Fearless
Caregiver conference with our good friends at the Philadelphia
Corporation for Aging (PCA). It was a great day and we were able to
honor three tremendous Fearless Caregivers, two who have opened their
homes to caregivers needing to stay in the area when loved ones are in
the hospital. And one who has opened her heart to a child with no place
else to go. It was a distinct pleasure to spend the day with Ella
Brown, and Lotte & Chad Gottschlich.
August 2004 - I went to
Midland Michigan where a family caregiver named Roger taught me to “Hope
Less and Care More” Roger was talking about the upcoming holiday weekend
and how he worries about the care his wife June will require. He said
that he found himself saying, “I hope she is not incontinent”, ”I hope I
can handle things”, “I hope we can manage”. (June attends daycare 5
days a week. He starts providing care at 4:30 each morning.) He
realized that he has to step back and “hope less” about things and “care
more”, knowing that he will be able to meet the challenges of her care.
That piece of advice alone was worth the trip as far as I’m concerned.
September 2004 - The Fearsome Four.
This Summer/Fall, we in South Florida were visited by a quartet of
blowhards; Charley, Frances, Ivan, Jeanne. Luckily none of these four
hurricanes scored a direct hit on my hometown of Fort Lauderdale;
unfortunately, they wrecked havoc on other parts of this state. Two of
them actually cut across the same exact path within weeks of one
another. Actually, the last of the four hurricanes was the only one that
hit while I was out of the area since I was born here, many moons ago.
This is not the at-bat average I would have hoped for as a kid. It was a
stunning realization sitting in the Pocono mountains during that
September weekend that the entire world did not consist of non-stop
weather forecasts before and during the event. Actually, my cohorts had
to pry the remote control from my fingers in order to take advantage of
the business retreat for which I had gone to the mountains. Oh well,
there’s always next hurricane season.
weekly_newsletter091404.htm
October 2004 - Big changes
online. Whew, after months of backbreaking work from our design and web
teams, the caregiver.com redesign is finally done. From the design to
the new navigational system, everything was carefully crafted to remake
caregiver.com into an evermore friendly place for caregivers to feel at
home. Hey, after ten years we all need some freshening up. Most
important of all, more options for interaction between caregivers were
added; chats, upgraded discussion boards, opportunities to share recipes
and receive situation specific advice in our ever growing roster of
channels.
weekly_newsletter100604.htm
We had fun at our second annual
Phoenix Fearless Caregiver conference. A world class panel of experts
and a Shrine auditorium filled with interested caregivers. As the
governor of a neighboring state would say “We’ll be back.”
November 2004 - Presidents on my
mind. I spent some time in the home of a remarkable former
president, Abe Lincoln, hosting a caregiving conference for the Project
Life Area Agency on Aging. It is only fitting in this intense
political season, to spend some time with Abe. He had a heck of a battle
for the White House, too and I hope the winner of this month’s
presidential elections will lead us through our own times as well as Abe
led our predecessors through their own trials and tribulations.
W are very excited about the
November/December cover interview in Today’s Caregiver magazine, Ms.
Naomi Judd. Spiritual, loving and a professional caregiver, Naomi
was the perfect choice with which to launch our Rural Caregiving issue.
weekly_newsletter110204.htm
December 2004 - As the holiday season approaches, I have begun
to hear from friends, family and readers about a staggering amount of
the most personal kind of theft – identity theft. What an
unforgivably terrible thing to do family caregivers. These days,
it is almost impossible not to be touched by this criminal act, as so
much information about us exists in the ionosphere. There are some
things you can do to help yourself avoid this crime, and with the
following newsletter, we begin to take a hard look at the issue of
identity theft.
weekly_newsletter120804.htm
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